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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

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Jan 24

Posted by: CaptainCardio
1/24/2013 9:01 AM  RssIcon

My name is Karla; I am 28 years old and was born with Tetralogy of Fallot. I was a “blue baby,” and had my first open heart surgery at 9 months old. I was blessed with two boys, who are now 5 and 2, before needing my second open heart surgery in June 2012 for a pulmonary valve replacement.

Parenting with TOF is a physical challenge. But it’s also the reason I feel I have done so well during my recovery. I’m very grateful for my sons, friends, and my great team of cardiologists that put me in touch with the ACHA. I love the feeling of community here. It’s helpful to know I’m not the only one whose heart is “funky.” Best of health to everyone.

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