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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Dan

Jan 18

Posted by: CaptainCardio
1/18/2013 4:01 PM  RssIcon

In 1969 I was born with a hum-dinger of a condition: Tetralogy of Fallot along with a deviated septum AND transposition of the greater vessels. I had a Blalock shunt in 1971 and a Potts shunt in 1974. In 1986 I had open heart and a Fontan procedure.

I am now 43 years old. I am married and I have two great - if not quirky - sons. For the past decade or so I have been experiencing atrial flutter. I've had two ablations and countless cardioversions. As I type my heart rate is fluttering around 130 bpm and I'm all queued up for another trip to the hospital tomorrow morning. In all likelihood, I'm going to have my Fontan upgraded with 21st Century medicine.

I've been living under this cloud for too long now and I hope there is some stability in my future. I'm a choral director and I have many more songs in my heart to share.

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Tags: Tetralogy of Fallot , Transposition of the Great Arteries (d-TGA) , Blalock-Taussig Shunt , Potts Shunt , Fontan , Ablation
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