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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

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Roxana

Jan 16

Posted by: ACHA
1/16/2013 2:19 PM  RssIcon

Last year, I had to have open heart surgery for the second time in life. My first was when I was a day old, and 30 years later I was told that I need a valve replacement. I never thought that I would need another surgery in my life. I was also told that I had an ascending aorta which at this time doesn't need to be fixed. This is so hard to deal with knowing that I have to get this done in the future and it’s been seven months since my surgery for the valve replacement. I hope that once I'm done with cardiac rehab I can try go back to my life.

I know it will never be normal because I'm not normal at all. Growing up with CHD as a kid wasn't hard at all, I lived a normal life never thinking I was different. As a kid my parents always told me I can do whatever I want, and I'm thankful for that. But now as an adult with CHD, I feel like need that strength again because even though I would have to have future surgery knowing I need to keep on moving to reach my goals. I am glad I found this site to know that there are other adults with CHD out there.

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