1/16/2013 2:19 PM
Last year, I had to have open heart surgery for the second time in life. My first was when I was a day old, and 30 years later I was told that I need a valve replacement. I never thought that I would need another surgery in my life. I was also told that I had an ascending aorta which at this time doesn't need to be fixed. This is so hard to deal with knowing that I have to get this done in the future and it’s been seven months since my surgery for the valve replacement. I hope that once I'm done with cardiac rehab I can try go back to my life.
I know it will never be normal because I'm not normal at all. Growing up with CHD as a kid wasn't hard at all, I lived a normal life never thinking I was different. As a kid my parents always told me I can do whatever I want, and I'm thankful for that. But now as an adult with CHD, I feel like need that strength again because even though I would have to have future surgery knowing I need to keep on moving to reach my goals. I am glad I found this site to know that there are other adults with CHD out there.