1/16/2013 11:15 AM
Hello! I am a 57-year-old female living in Ohio with CC-TGA. I have recently "met" Tina by phone and e-mail, but that was my first experience with meeting someone who had the same defect as me. I was happy to see Craig post his story and like Tina, there are a few of us out there past 40 and 50 (almost 60!) and still thriving!
I was diagnosed when I was 7 days old. I was also a blue baby, but miraculously have not had any surgeries or even a pacemaker. I, too, take a regimen of heart failure drugs and get checked by an Adult Congenital Specialist every 6 months with ECHO, heart monitor and blood work.
I feel very blessed to be here and lead a relatively "normal" life. I always was more fatigued than my classmates when I was in school and as I get older, I have slowed down quite a bit. BUT, I still work in a nursing home part time, take care of an elderly Mom and my beautiful rescue dog, as well as do volunteer work. I have a very supportive husband who has greatly helped me emotionally and continues to do so. Many more active years to come for all of us!