By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Express Yourself



Jan 16

Posted by: ACHA
1/16/2013 11:15 AM  RssIcon

Hello! I am a 57-year-old female living in Ohio with CC-TGA. I have recently "met" Tina by phone and e-mail, but that was my first experience with meeting someone who had the same defect as me. I was happy to see Craig post his story and like Tina, there are a few of us out there past 40 and 50 (almost 60!) and still thriving!

I was diagnosed when I was 7 days old. I was also a blue baby, but miraculously have not had any surgeries or even a pacemaker. I, too, take a regimen of heart failure drugs and get checked by an Adult Congenital Specialist every 6 months with ECHO, heart monitor and blood work.

I feel very blessed to be here and lead a relatively "normal" life. I always was more fatigued than my classmates when I was in school and as I get older, I have slowed down quite a bit. BUT, I still work in a nursing home part time, take care of an elderly Mom and my beautiful rescue dog, as well as do volunteer work. I have a very supportive husband who has greatly helped me emotionally and continues to do so. Many more active years to come for all of us!

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