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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.

Michelle

Jan 9

Posted by: CaptainCardio
1/9/2013 9:01 AM  RssIcon

My name is Michelle. I was born in April 1976 in Tucson Arizona. I was born lacking oxygen which caused me to be a blue baby. I was born with a congenital heart defect called tetralogy of Fallot. I have had three open heart surgeries. I moved out to California with my mom and dad because the hospital wasn’t equipped enough for my congenital heart defect. I had my first open heart surgery when I was 2 and ½ and the last one when I was 13.

I have several learning disabilities as well. I had a seizure when I was 18 and I was in a coma for about a couple of days. I don’t remember much because I suffered brain damage. Later on I found out that I have a syndrome called 22q11 which means that I am missing chromosomes.

I am now a DJ for my local college that I attend and promoting my story and cause so that one day we can fight and find a cure for congenital heart defects.

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Tags: Tetralogy of Fallot , 22q11.2 Deletion Syndrome
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