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By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.

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Jan 9

Posted by: CaptainCardio
1/9/2013 8:57 AM  RssIcon

I am a 52 year old man with congenitally-corrected transposition of the great vessels. I did not know I had this condition until I was 31 years old. I played both football and baseball in college and had always been very active. My condition was discovered by accident when I underwent a routine EKG. It was determined that I had 3rd degree heart block and a pacemaker was implanted.

Since then I have had 2 other pacemaker surgeries and had an ICD implanted in 2003 because of A-fib. I have not had any other surgeries. I am currently divorced and am providing for my 2 daughters and my granddaughter (ages 21,19, and 2). I work full time and am still active (although I had to give up skiing) and I am relatively asymptomatic. My condition is stable and I take the full regimen of heart failure drugs. My ejection fraction is about 40% and I have mild to moderate leakage in my tricuspid valve as well as a small VSD.

I live in a small town of about 5,000 people in a rural state. I have never met or spoken to anyone with CC-TGA, however, I am told that it’s a rare defect so that may not be surprising. I’m not sure why I’m writing this story other than I’m curious if there are others out there like me. I was told 20 years ago that most people with CC-TGA don’t live past 40 so I guess I’m doing alright. Thank you for providing me this opportunity to vent and reach out. If I can be of assistance to anyone I stand willing to do what I can. God bless and live each day to the fullest.

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