Simply fill out the form and hit “submit” when you’re done. You can even include a picture of yourself if you would like-just email a photo to firstname.lastname@example.org and it will be added to your story. You MUST be a member of ACHA to share your story, and membership is free for patients and patient family members! To join, click here and become a member today. If you have any questions or would like to speak with an ACHA staff member, contact Ruth Phillippi, Education and Outreach Manager, at RPhillippi@achaheart.org or call 888-921-ACHA.
By submitting your story and/or photo to ACHA, you are giving permission for your story and/or photo to be displayed on our website. The stories on this page are the property of the individual who has provided it. Stories may be edited for content. The experiences and opinions expressed are solely those of the individual, and do not reflect the opinions of the Adult Congenital Heart Association or any employee thereof. ACHA is not responsible for the accuracy of any of the information supplied within these stories.
These stories are presented for informational purposes only, and should not be substituted for professional advice. Always consult your physicians with your questions and concerns.
Your Story (500 words or less):
Membership is free! You'll get materials, discussion forum access, event invitations, e-communications and more.
ACHA professional members receive materials discounts, plus other benefits.
Access our searchable tool to learn more about current ACHD programs.
The ACHA/ISACHD ACHD Clinic Directory offers comparative information on ACHD clinics in the U.S. and Canada.
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