About ACHA
The Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to improving the quality of life and and extending the lives of adults with congenital heart defects (CHD). ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community—working with them to address the unmet needs of the long-term survivors of congenital heart defects through education, outreach, advocacy, and promotion of ACHD research.
Our website, print materials, media outreach, educational events, and advocacy events, allow us to reach out to adults with CHD and advocate for the ACHD community. ACHA offers information directly to patients and families, and provides materials and services through health-professional members.
ACHA was founded in 1998 by a group of adult congenital heart defect survivors and their families, and its Board of Directors continues to consist primarily of those living with heart defects. ACHA is dedicated to promoting excellence in ACHD care, and functions under the oversight of a Medical Advisory Board.
