Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.
Leadership Update: We're Springing Up All Over the Country!

This is the leadership update from April's e-newsletter.

Spring has sprung here at ACHA, and in the next few months, ACHA will be springing up all over the country! A key strategic goal for 2013 was to strengthen ACHA’s regional engagement and impact. Our first 2013 regional event, co-sponsored by the Chicago Adult Congenital Heart Network, kicked off in Chicago on March 21, and brought together more than 30 patients, family members, and ACHD providers. Our next two regional events are planned for June 6 in Los Angeles and June 8 in Portland, OR. Each will offer a chance to meet ACHA staff and Ambassadors, learn more about ACHA and congenital heart issues, and connect with other heart defect survivors and their families. Click here for more information about ACHA regional events

In May, ACHA will be partnering with Mended Little Hearts to bring our message of thriving throughout the lifespan to Winchester, VA, San Francisco and Indianapolis. Trained ACHA Ambassadors, each living with complex congenital heart disease, will help parents best support their child’s lifelong journey with CHD. If you know of a local parent’s support group that might be interested in participating in this initiative, email Ruth Phillippi at rphillippi@achaheart.org.  

On the professional side, volunteers with our Provider Action for Treating Congenital Hearts (PATCH) program from Ohio, Georgia, California, Michigan, and Massachusetts will continue to educate the local cardiology community about the unique needs of adults with congenital heart disease.

Finally, If you live in or around Los Angeles; San Francisco; Washington, DC; Brownsville, TX; Boston; Sacramento; Hershey, PA; Indianapolis; Long Island; Philadelphia; Richmond, VA; Chicago; or Pittsburgh, this spring your local Congenital Heart Walk will be a great opportunity to meet ACHA staff and volunteers, pick up ACHA materials, and connect with your local CHD community. Each of the locations above has a walk scheduled in the next three months; click here for the full schedule of dates and locations throughout 2013.

No events yet in your area? Remember, every day ACHA members from around the country “meet” each other through our online Discussion Forum and our Heart to Heart Ambassadors program. And every day, congenital heart patients and their families get needed support and information by calling 888-921-ACHA.

Wishing you a happy spring!

Amy Verstappen
ACHA President/CEO

Posted on Wednesday, April 17, 2013