Discussion Forum
A place for registered ACHA members to discuss issues with other members of the ACHA community and provide and receive support.
Leadership Update: Our 2012 Achievements By the Numbers

This is the leadership update from December's e-newsletter.

As the year draws to a close, it is a good moment to pause and reflect on ACHA’s 2012 achievements. One way to measure our achievements is through the numbers. This year, more than 1,000 new patient and family members joined ACHA, and total ACHA membership passed 10,000. By the end of the year, ACHA’s Member Services Manager and our 41 trained Heart to Heart Ambassadors will have helped more than 600 patients and family members face the challenges of living with congenital heart disease. In partnership with The Children’s Heart Foundation, we heightened congenital heart disease awareness through the Congenital Heart Walks. With 23 walks across the country, the walks brought together over 8,000 patients, family members, friends, and medical providers to unite to fight congenital heart disease. There were nearly 113,000 visits to ACHA’s website and Discussion Forum from people seeking congenital heart information and support. The Research Empowerment in Adult Congenital Heart (REACH) Disease Project enrolled more than 2,000 ACHD cases into the first-ever national ACHD research registry. Thanks to the Congenital Heart Futures Act, Congress invested $2 million in creating new ways to track the health of this nation’s more than 2 million congenital heart survivors.

We can also measure our impact in the power of one. One life saved through reaching special medical care. One heart comforted through the sharing of a heart journey. Every day, through our personal connections through blogs, our Discussion Forum, our Ambassadors, and our committed program staff, we transform lives one by one. Many of these stories are gathered at ACHA’s page on the GreatNonprofits website, which included ACHA in its list of 2012 top-rated nonprofits.

But the ultimate power of one lies in you—it is your support and your efforts that make every ACHA achievement possible. Please donate to ACHA, and transform your dollars into the research, education, advocacy, and support that every congenital heart patient needs to thrive throughout the lifespan.

Wishing everyone happy and healthy holidays,

Amy Verstappen
ACHA President/CEO

Posted on Tuesday, December 11, 2012