Home › Resource Center › For CHDers
Resource Center
For People with CHD
The following is a list of discussion listservs focusing on CHD and related conditions.
- ACHD: Adults with Congenital Heart Defects
Congenital Heart Information Network (CHIN) listserv for adults with Congenital Heart Defects. This list is open only to CHIN members. Please see CHIN's listserv directory for more information. - CHD-UK
This l ist has been set up for families and people with Congenital Heart Defects within the United Kingdom. - CHD_Webmaster
This is a discussion group for webmasters of Congenital Heart Defect sites, to share ideas and offer advice about website construction. Your website must be devoted to Congenital Heart Defects to join this list. To join, send a blank message to chd_webmaster-subscribe@aghorner.force9.co.uk. - Ebsteins Anomaly-Adults
This list is for adults with Ebsteins Anomaly to talk about living with Ebsteins, including medical care, the newest research, how our families deal with us, etc. - Eurohearts Listserv
For people with Congenital Heart Defects to discuss issues and share experiences. To join EuroHearts please go to www.egroups.com/group/eurohearts. - HeartlandHearts
This list is for Congenital Heart Defect patients living in the Midwest and their families. - L-TGA
This is a support group for adults or parents w/children with Congenitally Corrected Transposition of the Great Arteries (CCTGA). - Noonan Syndrome
This list is run by the Noonan Syndrome Support Group for anyone affected by the syndrome. To subscribe, send an e-mail to listserv@home.ease.lsoft.com with SUBSCRIBE NOONAN-SYNDROME in the subject and body of the message. - Pulmonary Hypertension Association Lists
The PHA runs several lists for people affected by pulmonary hypetension:- PHA Advocacy
This list is for PHA members wishing to participate in grassroots awareness and advocacy efforts. - PHA International
- PHA Advocacy
- Synjan postituslista
Tilaa lista eGroups in kautta. Lista löytyy sieltä otsikon Health | Disorders/Disease alta, tai suoraan osoitteesta www.egroups.com/subscribe.cgi/Synja. - VCFS Digest
This list is for individuals, families, and researchers/professionals dealing with VCFS/DiGeorge Syndrome (22q11.2 deletion). To subscribe, send an e-mail to listserv@maelstrom.stjohns.edu with SUBSCRIBE VCFS YOURFIRSTNAME YOURLASTNAME in the subject and body of the message.